- We value the contribution of all centre physicians and care teams.
- We value the involvement and respect the rights of patients.
- We foster an inclusive and welcoming workplace and research platform through respect and empathy for each other.
About us
MSBase Foundation
Learn more about us, and our mission, vision, and values.
About MSBase Foundation
The MSBase Foundation is an independent not-for-profit organisation that owns and operates the MSBase Registry - a unique international collaborative registry designed for clinicians working in the field of multiple sclerosis (MS) and other neuroimmunological diseases (NIDs), to collect, track, share and evaluate patient outcomes data.
The MSBase Foundation supports Registry members by providing freely available data-entry tools and scientific support.
The Registry commenced in 2004 and has accumulated over 122,000 patient records from 45 countries, and is the largest organised global repository of longitudinal, 'real-world' MS patient data.
The Registry aims to advance collaborative epidemiological and outcomes research to better understand MS and other NIDs, and to improve healthcare for those living with MS or other NIDs.
A global Board of Directors and a Scientific Leadership Group (SLG) govern The MSBase Foundation and provide strategic direction to the operations and scientific areas of the Foundation respectively. The Operations Team is responsible for the day-to-day maintenance and management of the Registry.
The Managing Director of the MSBase Foundation is the Chair of Multiple Sclerosis and Neuroimmunology research in the Monash Department of Neuroscience, STM and a Professor of Neurology. The Foundation has an agreement with the School of Translational Medicine, who host the MSBase Foundation operations team at the Alfred Centre in Melbourne.
Our mission
To provide a global governance framework, database tools, and research support to enable worldwide collaborative outcomes and epidemiologic research for the benefit of people with multiple sclerosis and other neuro-immunological diseases.
Our vision
To be the global leader in supporting collaborative, real-world, quality research in multiple sclerosis and other neuro-immunological diseases.
Our values
The following values drive the organisation’s culture and provide a framework for decisions.
- We facilitate collaborative research projects.
- We continually explore opportunities to collaborate with the broader scientific community.
- We encourage and support investigator-initiated research.
- We provide an opportunity for physicians to contribute to the scientific leadership of the organisation.
- We listen, learn and share information and work as a team to achieve success.
- We seek permission and consult our investigators about the use of data in global studies and provide them with all findings and reports.
- We are transparent in our research and business activities.
- We respect the confidentiality of patient data and require our investigators to follow all applicable local research ethical requirements.
- We take ownership of our work, contributions, decisions, and actions, ensuring trust and confidence.
- We strive to conduct meaningful research and disseminate our findings widely.
- We are proactive in recognising new and emerging research opportunities and needs.
- We aim to create evidence for better disease management.
- We strive to constantly improve the scope and methodology of our data collection.
MGBase has provided an efficient electronic database of capturing ur clinical observations and treatment responses in the MG clinic. It has the potential of allowing 'real world' global comparisons in treatment approaches, and providing exposure to Pharma of previously neglected research-oriented clinics with diverse patient populations.
Jeannine Heckmann, South Africa
