Data & findings

How is data collected?

Learn how data is collected to form the MGBase Registry.

Data collection method

Data is collected and transferred to the MGBase Registry via iMed Web.

iMed Web

The iMed Web application is a powerful, easy-to-use data collection and visualisation platform designed specifically for clinicians treating patients with multiple sclerosis. Provided at no cost to participating centres, it supports improved clinical decision-making through streamlined patient data capture, intuitive visual analytics, and evidence-based insights. The platform also enables a smooth and confident transition from iMed Classic and MDS, ensuring continuity of data, familiar workflows, and an enhanced user experience in a modern, secure environment.

Key Features

iMed Web App Security

Protecting patient data and ensuring platform integrity through enterprise-grade security controls. Features include:

  • Secure Identity Management: Integration with Microsoft Entra ID enables centralised identity control and secure user authentication via trusted enterprise providers.

  • Multi-Factor Authentication (MFA): Adds an extra layer of protection by requiring additional verification beyond passwords.

  • Role-Based Access Control: Fine-grained permissions ensure users can only access data relevant to their role and responsibilities.

  • Data Encryption: All data is encrypted both in transit and at rest to protect sensitive patient information.

  • Network Security & Firewalls: Advanced firewall protections and network controls safeguard the platform from unauthorised access and external threats.

  • Standards Compliance: Developed and operated in alignment with ISO 27001 information security standards.

 

Enhanced Patient Overview Graph

Quickly visualise key clinical indicators for Myasthenia Gravis (MG) patients at a glance. Features include:

  • Interactive Navigation: Select visits, MGFA classifications, antibody status, treatments (e.g. immunosuppressants, thymectomy, biologics), or exacerbation events to explore detailed patient data.

  • Flexible Viewing: Zoom in on periods of disease progression or remission and export graphs as PDFs or image files for clinical review or reporting.

  • Customisation: Build and save personalised MG-focused graphs (e.g. symptom severity, treatment response) accessible across your centre.

  • Data Plotting: Display up to two numeric time-series variables (e.g. MG-ADL score, QMG score) and up to ten percentage-change variables to monitor response to therapies and disease fluctuations over time.

Streamlined Assessment and Data Capture

Streamline the entry and management of Myasthenia Gravis (MG) patient demographic and longitudinal clinical data. Features include:

  • Clinical Calculators: Built-in tools for MG-specific assessments such as MGFA classification, MG-ADL, QMG, and quality-of-life measures to support consistent clinical evaluation.

  • Report Generation: Easily generate and export comprehensive MG patient reports and the Patient Overview Graph (POG) as PDFs for clinical review, case discussions, or research use.

  • Custom Data Fields: Define centre-specific fields (Text, Numeric, Long Text, Date, Checkbox, Dropdown) to collect data tailored to your clinical needs.

  • Data Export and Search: Efficiently search, filter, and export patient-entered data for clinical review or research purposes.

Clinical Statistics Dashboard

Explore and filter cumulative data across your centre:

  • Interactive Graphs: Use each graph to apply filters and identify patients who meet specific clinical criteria.

  • Export Options: Easily download graphs in PDF or JPG format for reporting or presentations.

Demographic Comparison with the MSBase Registry

Assess how your centre’s patient demographics align with those in the broader MGBase Registry:

  • Visual Benchmarking: Compare your centre(s) to the MGBase Registry across a comprehensive set of demographic metrics.

  • Detailed Analytics: View distributions and central tendency measures (e.g., mean, median) for both your data and the Registry.

Seamless Integration with the MGBase Registry

Carry out most routine tasks directly within iMed Web—no need to access the MGBase Registry separately:

  • Real-Time Sync: Automatic, real-time data synchronisation with the MGBase Registry.

  • Sub-Study Management: Create, view, join, and manage sub-studies entirely within iMed Web.

  • Smart Notifications: Stay updated with reminders for new sub-studies, backups, and other key events.

  • Effortless Enrolment: Easily enrol patients into the Registry and relevant sub-studies from iMed Web.

Membership

Take part, make a difference!

Take part by joining a collaboration dedicated to making a difference to the lives of patients with MG and other neuro-immunological diseases. 

Become a member